New Research Study: Behaviour that Challenges in SATB2-associated syndrome

We would like to thank all parents and caregivers who participated in our recent questionnaire and interview study. Following on from this study, we are no excited to launch the next stage of our research project! This new stage is open to all families, even if you have not previously participated in our research.

For this new stage, the research team would like to invite individuals with SATB2-associated syndrome (age 4 years old and over) and their parents or caregivers to complete a range of assessments during a research assessment day. The aim is to find out more about behaviours that challenge in SATB2-associated syndrome by examining which person and environmental characteristics are associated with these behaviours. The assessment day will be in your home, either face-to-face or via remote video call, depending on your preference and location. English-speaking families based in the UK and internationally are welcome to take part!

It is hoped that this research will further our knowledge of behaviours that challenge and help us to identify factors that contribute to these behaviours.

Interested in taking part or finding out more? 

You can do so in the following ways:

1. Email the research team to register your interest: Lauren Shelley or Dr Jane Waite. We will then contact you to provide more information.

2. Complete an online expression of interest by using the link below, and a member of the research team will contact you to provide more information.  Link to online expression of interest form: