The SATB2 Gene Foundation is seeking the interest of SAS families to help us grow! Please take a few moments to complete the Family Interest Survey to indicate how you would like to be involved. As always, you can also support with a financial donation, and by helping us spread the word! Follow the links here to submit a donation and join our mailing list. Don’t forget to find us on social media!


We know times are hard right now for our global community.  We would like to encourage ways to get involved with the SATB2 Gene Foundation to continue to drive our mission forward.  There are many ways which do not involve fundraising, and of course many ways that do involve fundraising.  No amount – whether it is your time, talent, or treasure – is too small to help make an impact for our SATB2-associated syndrome families.

If you are looking for ways to support the SATB2 Gene Foundation and help other SATB2 families while self-isolating at home, here are some great opportunities for you!


Fundraise however you can! There are several different ways to donate, create fundraisers, and buy SATB2 products that support the foundation and research.

Become a monthly donor by donating just $10 or $20/month creates a predictable revenue stream which allows us to plan long term activities, expand our projects each month, and continue funding much needed research.  Click here and select your donation schedule (one-time, monthly, quarterly, or annually).

Create a Facebook fundraiser for your birthday, or any occasion.  Facebook does not take any fees from your donation and has been a very successful way that you all have helped us raise critical funds!

Purchase awareness apparel from our Bonfire store.

Help us brainstorm ideas for virtual fundraisers or small fundraisers in your community.  Most in person fundraisers and large gatherings are off of the table for the foreseeable future.  We need new ideas!  Do you know someone willing to donate a portion of their proceeds from a craft or restaurant?  Do you want to help host a virtual fun run?  Send us your ideas to

Help us look for grant opportunities to apply for!  There are many options available, and your help in identifying them is appreciated and if you have experience with grant writing, we need that help too!


Not sure how to volunteer or ready to take on a larger project?  That’s ok, we need volunteers to help craft social media posts, plan our newly revamped 2021 family conference, secure webinar speakers, create awareness day materials, and so much more.  Join our SATB2 Gene Foundation Volunteer Facebook group, where we post brainstorming ideas, projects and more.  Not on Facebook? That’s ok, complete our Volunteer Interest Survey and we’ll contact you!


Have a #SASsmile you want to share?  Submit your story, your SAS Smile, or a short intro of your child below for our social media pages!  This is a great way to help celebrate our community, raise awareness and lets others know all about SAS. You can also submit a story for #WarriorWednesday where we will start featuring our amazing SAS children weekly!

Use our hashtags #SATB2 #ShowYourSAS #MySATB2Kid and tag us!  We’re on Facebook, Instagram and Twitter.  Be sure to follow us and share our posts!

Do you have other ideas?  Or just want to connect and talk to others who are on the same journey?  Email us at!  We’re always here for you each step of the way.