US CONFERENCE

Thank you to everyone who joined us in July 2022 in person or virtually.  Please note our next in person Family & Medical Conference will be held in 2024. 

The biannual SATB2-associated syndrome family conference is an opportunity to bring our families together for two full days of workshops and networking.  We bring together researchers, parents, and patients together in one place to advance our knowledge of SAS and support our families and medical communities.  This is an amazing opportunity to connect with our families and know that you are not alone.

We look forward to hosting our 2022 IN-PERSON SATB2-Associated Syndrome Conference July 13 – 15, 2022 in Orlando, Florida!  We will be posting hotel information, room rates, agenda, COVID-19 policies, and registration by Mid-March.  Be sure you are on our email list to be the first to receive updates.

  • Save the Date: July 14 – 15, 2022, Orlando, Florida 

SPONSORSHIP OPPORTUNITIES

In addition to gaining corporate recognition and marketing benefits, your company could significantly impact the lives of SAS patients and their families. Choose the sponsorship level that is the best fit for you or your business.

Friends $250

  • Name included on the conference page of our website
  • Name included in social media posts with a link to your company’s desired landing page/social media
  • Your name or business name listed in our conference program

Leaders $750 

  • Name included on the conference page of our website and social media platforms with a link to your company
  • Your name or business name listed in our conference program
  • Opportunity to distribute your company’s information or coupon in conference folders
  • Your business name/logo on sponsor boards displayed at the conference

Champions $2,500 

  • Name included on the conference page of our website and social media platforms with a link to your company
  • Your business logo and short company description listed in conference program
  • Opportunity to distribute your company’s information or coupon in conference folders
  • Your business name/logo on sponsors boards displayed at the conference
  • Business name/logo on screens between sessions during the full duration of the conference
  • Opportunity to directly interact with conference attendees.  Your company will receive a table in the primary meeting room for the conference duration and two complimentary conference registrations.
  • An opportunity to speak (or share a pre-recorded video) briefly during one of our large group sessions to help our attendees learn more about your company and the services available.

Game Changers $5,000 

  • Business logo on our website’s home page (through the end of August) and social media platforms with a link to your company for all event-related pages and social media posts.
  • Logo included on the conference page of website and social media platforms with a link to your company
  • Your business logo and short company description listed in conference program
  • Opportunity to distribute your company’s information or coupon in conference folders
  • Your business logo on sponsor boards displayed at the conference
  • Business logo on screens between sessions during the full duration of the conference
  • Business name/logo on all conference-related email blasts pre and post-conference
  • Opportunity to display company signage (provided by company) next to the registration desk
  • Opportunity to directly interact with conference attendees. Your company will receive a table in the primary meeting room for the conference duration and four complimentary conference registrations.
  • An opportunity to present a 30-minutes breakout session for attendees during the conference or the ability to host a Zoom meeting with families post-conference
  • Recognition during the large group conference sessions

100% of funds raised from sponsorships will be used to offset conference expenses.  Amounts raised that exceed the cost of the conference will be awarded to families for travel stipends.

For more information, reach out to Allison Kaczenski at allison@satb2gene.org or (678) 832-9133

CONFERENCE VOLUNTEERS

Are you interested in serving as a volunteer for the SAS family conference planning? Great, we need all the hands-on deck as we can in order to ensure a successful conference for our families. See below for our committees and let us know what interests you!

Interested? Email us at conference@satb2gene.org to let us know which committee you are interested in assisting with to get started.

The goal of the sponsorship committee is to help secure corporations and individuals who would like to make a financial contribution to help offset the costs of the Foundation for putting on the conference. The development of the sponsorship packages still need to be developed and a general solicitation letter that can be used.  Anyone who has fundraising or corporate fundraising experience would be a great fit.  Corporations would receive recognition for their support pre and post-conference as well as during the conference to our attendees.

Who doesn’t love a goodie bag!  The goal of this committee is to help secure donated items for our attendees for a welcome bag.  The goal would be to have a bag for every single attendee (forecasting 200 to 250 attendees), but at minimum, one bag per family attending (let’s call that 125).  Items donated in the past have been coloring books and crayons, sticker books, stress balls, sample wipes, coupons, snacks, water bottles, etc.  Anyone local to Orlando – it would be great to get some coupons from area businesses for our guests.

The goal of this committee is to first help develop the agenda for the 2 days of sessions.  What topics do our families want to learn about most to be able to give everyone the most valuable information they need to help their SAS children?  Topics range from IEPs, Estate Planning, AAC information, to our research and scientific information.  Development of the agenda should help to cover topics that relate to families of children who are young to also adult age children, international families and more.  Once we begin to identify topics, we will look for speakers who are qualified to speak on these topics (goal is to find speakers who are already in the area of Orlando, FL but all options are available to see what we can do to help offset any costs for the right person to attend).

The last two conferences, we have had small raffles to help raise additional funds to support the Foundation.  Securing of raffle items such as VISA gift cards, medical strollers, weighted blankets, weighted vests, vacations and more are just a few to name.  Some companies may not want to donate 200 items, but are willing to donate one or two larger items that we can use for the raffle.  We’ll need to refresh the letter which we use for the ask, and have at least one detailed orientated person to help keep track of who all we are asking.  This committee could work in tandem or as a part of the swag bag committee.

We need extra hands on deck to help at the actual conference!  From helping to put together welcome bags, registration, manning various tables, and more, extra help is needed to help ensure that we are putting on a well run conference.  Tasks from range in size and time commitment and we’ll start with set up on Wednesday, July 13th.