Dear SATB2-Associated Syndrome Community,

We would appreciate your insight on a new project!

The SATB2 Gene Foundation is participating in partnership with the Castleman Disease Collaborative Network (CDCN) and the Chan Zuckerberg Initiative. The goal is to understand the state of drug repurposing in rare diseases and create a shared, free resource that will make it easier to pursue successful drug repurposing.

If you’d like to join us in this important work, please click the link below to complete the survey as a patient, loved one of a patient, physician, or researcher.

  • bit.ly/repurposingsurvey
  • Expected duration: 15-20 minutes
  • Deadline: November 9, 2021.
  • A Spanish version is available / Hay una versión en español para pacientes

If you have any further questions, please contact project lead Ania Korsunska at ania@castlemannetwork.org or check out our website https://cdcn.org/roadmap.

Thank you so much for joining us in this effort to revolutionize drug repurposing!

95% of the ~7,000 rare diseases do not have a single FDA-approved therapy. Since incentives for new drug development for rare diseases are limited, drug repurposing provides a promising way to identify effective treatments for rare diseases faster and cheaper. There are many treatments out there which could be useful for many rare diseases, but to date, there has been no systematic effort to gather such a large and diverse data set of information and experiences, and no centralized resource exists that can help guide drug repurposing. With your support, we can help create it!