SATB2 AWARENESS DAY

#mySATB2kid  #showyourSAS #SATB2

Each August 22 marks an amazing opportunity for the SATB2-associated syndrome (SAS) community and the SATB2 Gene Foundation. This particular day is one where we can all come together to spread the word about SAS and raise awareness within the community. It’s a way to take action so that the children and families affected by this rare condition can get the best care, have the greatest support, and experience the childhood they deserve.

Why August 22nd?

August 22 was chosen to help honor our primary genetic researcher who has not only brought all of us together, but has also brought much needed research to this rare condition. On August 22 we not only celebrate awareness to SATB2, but also help celebrate and honor Dr. Yuri Zarate on his birthday!

WE NEED YOUR HELP

We need to hear from YOU! Help us tell the story about our amazing SAS family.

  1. Share your story! See below for a sample “Meet my child” or share more with us! Click here to submit your story and photos today!

  2. Update your Facebook profile photo with our awareness day photo frame!

  3. Wear purple to help #ShowYourSAS on August 22nd.

  4. #ColorYourSAS – Print and color our new coloring sheets! Be sure to post a picture of your final coloring and tag us and use #ColorYourSAS !

HOW TO GET INVOLVED

There are 3 easy ways to get the word out online

  1. Show your support:  Change your Facebook profile frame to let your friends know that you’re helping to raise awareness of SATB2-associated syndrome (SAS) and the 450+ children affected by this condition.
  2. Spread the word:  Use one of our sample posts to raise awareness, increase support, and encourage others to take action online using the hashtags #mySATB2kid and #showyourSAS.  Also print our sign and take a photo and post back out to social media.
  3. Take some action:  Help raise critical funds to support the SATB2 Gene Foundation to help fulfill the mission of raising awareness, supporting families and funding research for SATB2-associated syndrome. Create a Facebook fundraiser and invite your friends, host a hot dog sell at your local grocery store, share a video with your child’s school, and so much more. In 2018 we were able to raise $25,000 from awareness day, let’s double that this year so we can further our mission!

Click here to download the “Ways to Get Involved Flyer” 

Click here to download and print the SATB2 Awareness Day sign and take a photo and post back to social media and don’t forget to use our hashtags! #ShowYourSAS #MySATB2Kid #SATB2 #SATB2Awareness

Need help or have ideas? Shoot us an email and we’ll be happy to help!