SATB2 AWARENESS DAY
August 22 marks an amazing opportunity for the SATB2-Associated Syndrome (SAS) community to celebrate and spread the word about SAS, as well as advocate for continued research and support to improve the lives of those impacted.
Why August 22nd?
August 22 was chosen because it is the birthday of our primary genetic researcher, Dr. Yuri Zarate. Not only has Dr. Zarate brought our community together, but he has also brought much needed research and attention to this rare condition. On August 22, we honor him and all of the progress made for our families.
How You Can Get Involved
It’s as easy as 1, 2, 3!
SHARE
- Share your SAS child’s story.
- Share your SAS child’s photo with us!
- Throughout the month of August, we’ll be posting facts about SAS on social media! Check us out on Facebook, Instagram, and Twitter and help us educate others by sharing with your networks.
- Update your profile picture on your social media accounts with our SATB2 Gene Foundation logo and a favorite photo of your SASsy kid!
- Wear purple or your finest SAS t-shirt on August 22, and tell 5 people about the condition using our NEW info card
- Distribute our SAS coloring pages in school, camp, or among friends
- Display our customized SAS zoom background during your virtual meetings on August 22 or anytime of the year!
- Include SAS and SATB2 Gene Foundation information in your e-signature.
- Take a selfie or family picture with one of our SATB2 Signs below and share it on social media using hashtags #MySATB2kid and #ShowYourSAS:
- Enroll in the SATB2-Associated Syndrome patient registry, if you haven’t done so already!
FUNDRAISE
- Create a fundraising page on Facebook.
- Host a lemonade or hotdog stand outside of your house or at the playground to raise both awareness and funds for the SATB2 Gene Foundation.
- Host a garage sale or Facebook Marketplace sale, with all proceeds going to the SATB2 Gene Foundation.
- Ask your favorite coffee shop or local store to put a donation jar on their counter in honor of SAS for the month of August; you can even paste a picture of your child, or our website donate page QR code or Venmo donate QR code, onto the jar as well!
- For additional fundraising ideas and how to get started check out our new Event Guide. Ready to get started? Let us know so we can help promote your event by submitting this short form!
DONATE
- To celebrate our 5th anniversary, donate any amount to the SATB2 Gene Foundation that has the number #5 in it and encourage others to do the same! Gifts in any amount throughout the month of August are directed towards our SATB2 Research efforts to advance our knowledge of SATB2-Associated Syndrome and move us towards treatments.
- Ask 5 friends to donate in honor of your SAS loved one! All donations are 100% tax deductible.
Have other suggestions for how families can get involved? Or need assistance with implementing an idea? We’re here to help! Get in touch with us at info@satb2gene.org.
