Let’s face it. Providing for your SAS loved one can get expensive. If you need assistance, the SATB2 Gene Foundation may be able to help.

We are proud to announce the launch of the 2023 SATB2 Gene Foundation Family Assistance Program (FAP). In 2021 we were able to support 19 SAS families and in 2022 we supported 18 families.  We are currently accepting applications through July 20, 2023, for our Family Assistance Program as part of our mission and ongoing commitment to providing our SAS families with the support they need. Families who apply and are approved for assistance can receive up to $1,200 USD to help them pay for items such as:

  • Specialty Support Items (Examples include wheelchairs, medical strollers, specialty beds, and specialty car seats)
  • Communication Support (This includes tablets, iPADs, communication apps, and specialty equipment to improve educational success and enhance communication.)
  • Adaptive play items (Examples include adaptive bikes and swings; full-support swimming seats; bouncy chairs; weighted vests and blankets; sensory sacks)
  • Base therapies (speech therapy, physical therapy, occupational therapy, applied behavior analysis therapy)
  • Alternative therapies (e.g., therapeutic horseback riding; aquatic, music therapy, or massage therapy)
  • Travel to a clinic/specialist (excluding travel to the ACH Multidisciplinary Clinic)

Please note that a confirmation of a SATB2-Associated Syndrome Diagnosis must be submitted as part of the application which can be uploaded during the application process or emailed by the deadline to  Failure to submit proof of diagnosis by July 20th will make your application incomplete and will not be considered for funding.

As there are often more applications for funding than can be supported, the board will prioritize applications from families in need who have yet to receive funding through the SATB2 Gene Foundation ahead of families who have received awards from either the Family Assistance Program or the GPD Employee Foundation iPad for Communication grant, per SAS dependent, during the current 3-year look-back period running from 2020 through 2022.

To learn more about the SATB2 Gene Foundation FAP, or to submit an application, click below.


The SATB2-associated syndrome Family Support Group (closed Facebook group) is a highly active group of family members of individuals with SATB2-associated syndrome.  Our SATB2-associated syndrome Family Support Group has daily communication on topics such as medical, developmental, and behavioral issues.  Additionally, we share resources with each other, and importantly, we also share triumphs, which we call SAS Smiles.  Members include families from all over the United States and Europe, as well as Australia and Canada.  Parents of individuals with SATB2-associated syndrome are encouraged to request access to join the group by clicking the button below. If you need additional assistance with your membership request for this group, please email Wiebke Sunderhauf.


An ongoing list of resources will be added here for families both within the United States and Internationally.  Visit this page often for updates.  Have a resource to share?  Email us to have it added! Please continue to check back as we update this section with more resources.

This is a grant for US citizens with disabilities up to age 18 who have private insurance that doesn’t cover the amount of therapy needed, or doesn’t cover therapy at all. Children on Medicaid are not eligible, but if you do qualify, you can receive up to a $10,000 lifetime max of therapy/ medical equipment! Go to to find out more about it!

There has been a lot of talk about Childhood Apraxia of Speech; many of our children were diagnosed with this disorder before we found the genetic diagnosis! The best website to visit for this is Apraxia Kids. There are videos and information you can easily download to learn more.

If you or your Speech Language Pathologist (SLP) wants more information about Apraxia, but can’t attend the conference, there are webinars, live and on-demand, available. If you are looking for a good Apraxia SLP, there is a list available at Currently, only SLPs in the USA and Canada are listed, but if you submit an email, you can sometimes get information about SLP graduates in other countries.

Normally, America the Beautiful passes are about $80/ year. BUT, you take a copy of your child’s birth certificate and genetic diagnosis to any ranger’s station in any national park in the United States, you can get a pass for your child to get into any national park in the United States for free, for life!! If you prefer, you can mail in the information with a $10 processing fee, and get it back. And for the majority of parks, that allows whoever is in the car with them to get in for free as well! Also part of the pass is discounts on camping grounds and merchandise purchases when shown in the parks. Click here to learn more.

Wrightslaw is a great starting point to learn more about Special Education Law and how to advocate for your child’s best interest during their IEP meeting.


See below for additional family resources videos related to SATB2-Associated Syndrome.