Let’s face it. Providing for your SAS loved one can get expensive. If you need assistance, the SATB2 Gene Foundation may be able to help.

We are proud to announce the launch of the SATB2 Gene Foundation Family Assistance Program (FAP). In 2021 we were able to support 19 SAS families globally through our inaugural FAP.  In 2022, during the month of October only, we will accept applications for our Family Assistance Program as part of our mission and ongoing commitment to providing our SAS families with the support they need. Families who apply and are approved for assistance can receive up to $1,200 to help them pay for items such as:

• Durable medical goods (e.g., wheelchairs, orthotics, medical strollers, specialty beds, etc.)
• Devices or equipment intended to support or enhance communication and education (e.g., tablets/iPADs, communication apps, and specialty equipment to improve educational success and enhance communication.)
• Adaptive play items (e.g., adaptive bikes and swings; full-support swimming seats; bouncy chairs; weighted vests and blankets; sensory sacks)
• Base therapies (speech therapy, physical therapy, occupational therapy, applied behavior analysis therapy)
• Alternative therapies (e.g., therapeutic horseback riding; aquatic, music, or massage therapy)
• Travel to a clinic/specialist (excluding the ACH Multidisciplinary Clinic)

Please note that a confirmation of a SATB2-Associated Syndrome Diagnosis must be on file with the SATB2 Gene Foundation or on record with Arkansas Children’s Hospital as part of the Clinical Registry in order for your application to be considered.  Failure to submit proof of diagnosis by October 31st will not be considered for funding.

To learn more about the SATB2 Gene Foundation FAP, or to submit an application, click below.

The SATB2-associated syndrome Family Support Group (closed Facebook group) is a highly active group of family members of individuals with SATB2-associated syndrome.  Our SATB2-associated syndrome Family Support Group has daily communication on topics such as medical, developmental, and behavioral issues.  Additionally, we share resources with each other, and importantly, we also share triumphs, which we call SAS Smiles.  Members include families from all over the United States and Europe, as well as Australia and Canada.  Parents of individuals with SATB2-associated syndrome are encouraged to request access to join the group by clicking the button below. If you need additional assistance with your membership request for this group, please email Wiebke Sunderhauf.

An ongoing list of resources will be added here for families both within the United States and Internationally.  Visit this page often for updates.  Have a resource to share?  Email us to have it added! Please continue to check back as we update this section with more resources.

See below for additional family resources videos related to SATB2-Associated Syndrome.