BEOND Study Recruitment

Behavioural and Emotional Outcomes in Neurodevelopmental Disorders (BEOND) We would like to invite parents and caregivers of any person with SATB2-associated syndrome to the BEOND survey! Participants will be asked to respond to a variety

Bone Health Research Paper Published

Just released: Bone Health surveillance recommendations for individuals with SATB2-associated syndrome (SAS) have been published in the American Journal of Medical Genetics. Given the risk of bone fracture, low bone mineral density, abnormal markers for

June Virtual Meet Up

Join us on Tuesday, June 27th at 7pm EST / 4pm CST for our June Virtual Meet up as we welcome pediatric Occupational Therapist Michael Pullmann.  Pullmann is an Occupational Therapist based in South Carolina

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