FAMILY #SASsy STORIES

This is a journey and we are stronger with each other. See below for videos from some of our featured families.

2018 SATB2-associated syndrome family conference - Sibling Perspective. Held during the June 2018 SATB2 conference in Little Rock, Arkansas (USA)
SATB2 Sibling Perspective

2018 SATB2-associated syndrome family conference - Sibling Perspective. Held during the June 2018 SATB2 conference in Little Rock, Arkansas (USA)

YouTube Video UExNSXdxNmNwVHU0THFWd3FKVkJhM0hCTXNNUXZ3ZlhuOC41NkI0NEY2RDEwNTU3Q0M2
SATB2 VIDEO 1 V2 mack

YouTube Video UExNSXdxNmNwVHU0THFWd3FKVkJhM0hCTXNNUXZ3ZlhuOC4yODlGNEE0NkRGMEEzMEQy
Meet 3 SATB2-associated syndrome families and Dr. Yuri Zarate to learn more about living with SATB2.
SATB2Video4

Meet 3 SATB2-associated syndrome families and Dr. Yuri Zarate to learn more about living with SATB2.

YouTube Video UExNSXdxNmNwVHU0THFWd3FKVkJhM0hCTXNNUXZ3ZlhuOC4wMTcyMDhGQUE4NTIzM0Y5
Meet 3 SATB2 families. Interviews hosted by Chris Ulmer of Special Books by Special Kids.
SATB2VIDEO3

Meet 3 SATB2 families. Interviews hosted by Chris Ulmer of Special Books by Special Kids.

YouTube Video UExNSXdxNmNwVHU0THFWd3FKVkJhM0hCTXNNUXZ3ZlhuOC41MjE1MkI0OTQ2QzJGNzNG
What is life with SATB2 like for Mack?
SATB2 Associated Syndrome

What is life with SATB2 like for Mack?

YouTube Video UExNSXdxNmNwVHU0THFWd3FKVkJhM0hCTXNNUXZ3ZlhuOC4wOTA3OTZBNzVEMTUzOTMy
Two SAS families with older children discuss the transition to adulthood.
SATB2 Transition to Adulthood

Two SAS families with older children discuss the transition to adulthood.

YouTube Video UExNSXdxNmNwVHU0THFWd3FKVkJhM0hCTXNNUXZ3ZlhuOC4xMkVGQjNCMUM1N0RFNEUx
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BLOGS AND ARTICLES BY PARENTS

We have some amazing moms who blog about SATB2-associated syndrome.  Please visit their blogs to learn more about our daily life caring for individuals with SATB2-associated syndrome. We also have some amazing parents who have written articles that we hope you will find helpful for wherever you are on your journey.

  • Blog: Fun with SATB2-Associated Syndrome

  • Blog: SATB2 Daily Life

  • Article: Why I’m No Longer Scared to Parent a Child with a Disability

  • Article: Move Through Grief as a Dad of a Son with a Disability

  • Article: What I Wish I Knew When My Daughter Was Diagnosed with SATB2 Syndrome