OUR MISSION
The SATB2 Gene Foundation, Inc. was established to enrich the lives of individuals with SATB2-associated syndrome, including those diagnosed with the condition and their families, through support, research and education. Our mission will be met by raising awareness about the characteristics of SATB2-associated syndrome, providing support to families, and supporting research in a wide range of issues related to SATB2-associated syndrome.
UPCOMING EVENTS
Upcoming SATB2 and community events.
SATB2 NEWS & ARTICLES
BEOND Study Recruitment
Behavioural and Emotional Outcomes in Neurodevelopmental Disorders (BEOND) We would like to invite parents and caregivers of any person with SATB2-associated syndrome to the BEOND survey! Participants will be asked to respond to a variety
Bone Health Research Paper Published
Just released: Bone Health surveillance recommendations for individuals with SATB2-associated syndrome (SAS) have been published in the American Journal of Medical Genetics. Given the risk of bone fracture, low bone mineral density, abnormal markers for
2023 Research Grant Program Open Call
This year we are pleased to share that the SATB2 community helped raise $26,129 to allocate to research funding. We are encouraging applicants to request up to $15,000 USD in direct costs and are hopeful
June Virtual Meet Up
Join us on Tuesday, June 27th at 7pm EST / 4pm CST for our June Virtual Meet up as we welcome pediatric Occupational Therapist Michael Pullmann. Pullmann is an Occupational Therapist based in South Carolina