OUR MISSION
The SATB2 Gene Foundation, Inc. was established to enrich the lives of individuals with SATB2-associated syndrome, including those diagnosed with the condition and their families, through support, research and education. Our mission will be met by raising awareness about the characteristics of SATB2-associated syndrome, providing support to families, and supporting research in a wide range of issues related to SATB2-associated syndrome.
SATB2 NEWS & ARTICLES
SAS Adult Families Virtual Meet Up
SAS Adult Families Virtual Meet Up If you are a family member of an adult loved one with SAS, please join Bill and Terry Regan for a time of discussion and support
SAS Speech and Language Survey Report
SAS Speech & Language Survey Report In order to support families with a SAS diagnosis, in June 2021 an independent study supported by the SATB2 Gene Foundation was launched to better understand
Interview Study: Behaviours
Interview Study: Behaviours that Challenge in SATB2-associated syndrome Researchers at Aston University are conducting an interview study that aims to find out more about behaviours that challenge in SATB2-associated syndrome. We would
DRUG REPURPOSING SURVEY
DRUG REPURPOSING ROADMAP SURVEY Dear SATB2-Associated Syndrome Community, We would appreciate your insight on a new project! The SATB2 Gene Foundation is participating in partnership with the Castleman Disease Collaborative Network (CDCN)