Events for November 10 - January 20

Adult Parents Perspective

Hear from parents of adult SATB2 children as we reflect on lessons learned, life of raising a child with SAS, and more.  Parents of Lindsay, age 31, Terry and Bill

2021 US Conference

Save the Date:  July 8 – 10, 2021, Atlanta, GA Due to continued risk during the COVID-19 pandemic, the conference has been cancelled for 2021. We will keep you updated

2021 SATB2 Awareness Day

2021 SATB2 Awareness Day #mySATB2kid  #showyourSAS #SATB2 Each August 22 marks an amazing opportunity for the SATB2-associated syndrome (SAS) community and the SATB2 Gene Foundation. This particular day is one

2022 February SATB2 Multidisciplinary Clinic

Arkansas Children's Hospital 1 Children's Way, Little Rock, AR, United States

Arkansas Children’s Hospital (ACH) hosts the only dedicated multidisciplinary clinic for SAS in the United States. Participants can anticipate to undergo a comprehensive evaluation by ACH’s experienced SATB2 team. Spaces are

2022 June SATB2 Multidisciplinary Clinic

Arkansas Children's Hospital 1 Children's Way, Little Rock, AR, United States

Arkansas Children’s Hospital (ACH) hosts the only dedicated multidisciplinary clinic for SAS in the United States. Participants can anticipate to undergo a comprehensive evaluation by ACH’s experienced SATB2 team. Spaces are

2022 Family Conference

Wyndham Orlando Resort International Drive 8001 International Drive, Orlando, FL, United States

Thank you to our sponsors!   Champion Sponsors  Allison and Matt Kaczenski  Leader Sponsor The Croft Family  Save the Date:  July 14 – 15, 2022, Orlando, Florida (USA) Current details on

2022 SATB2 Awareness Day

Make a splash and #ShowYourSAS #mySATB2kid  #showyourSAS #SATB2 August 22nd is a day that not only brings all of us together – but it helps to bring others into our

2022 October SATB2 Multidisciplinary Clinic

Arkansas Children's Hospital 1 Children's Way, Little Rock, AR, United States

Arkansas Children’s Hospital (ACH) hosts the only dedicated multidisciplinary clinic for SAS in the United States. Participants can anticipate to undergo a comprehensive evaluation by ACH’s experienced SATB2 team. Spaces are

Florida Kick-Off Virtual Meet Up

Join Family Support Network Representative, Rachel Ward, for a Kick Off to learn more about the Family Support Network Program.  Meet other SAS families from Florida and learn about plans

Minnesota Kick-Off Virtual Meet Up

Join Family Support Network Representative, Tiffany Krueger and Alyse Loomis, for a Kick Off to learn more about the Family Support Network Program.  Meet other SAS families from Minnesota and

California Kick-Off Virtual Meet Up

Join Family Support Network Representatives, Linda Banares, Nancy Dadino, Irma Valdez, and Jacqueline Truong for a Kick Off to learn more about the Family Support Network Program.  Meet other SAS

Michigan Kick-Off Virtual Meet Up

Join Family Support Network Representative, Kortney Lee, for a Kick Off to learn more about the Family Support Network Program.  Meet other SAS families from Michigan and learn about plans for

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