The Family Support Network is a peer led program to empower families affected by SATB2-Associated Syndrome to navigate and support their journey.  Fully launching in 2024 our goal is to connect families together within a state or region to help navigate area resources, share connections to those close by and host virtual and in person meet ups.

What is a Family Support Representative? 

The Family Support Representative is a parent, caregiver, grandparent, or other SAS family member representative for the state or region in which they live. They act as a liaison between our families and the SATB2 Gene Foundation. They are also the point of contact for families in their state or region for general questions, guidance and support through and about the diagnosis of SATB2-Associated Syndrome (SAS) and the resources needed to navigate the needs of an individual with SAS.

If you would like to get connected to the Family Support Representative in your state, please click on the interactive map below to read more about them and to contact them directly. Please sure to also complete our Contact Registry and get counted!  This ensures we have your most current address and email so you can stay informed of what’s happening! 

If you do not have a representative for your state, you may contact Jenna at FamilySupport@satb2gene.org and she will assist you or get you connected with someone who can.

If you do not have a representative in your state and you think you may be interested in filling that role, please contact Jenna at FamilySupport@satb2gene.org.

*Please note that we are currently piloting this program in North America. If you are interested in expansion, please contact us and we will add you to our waitlist.  You can also check to see if there is a local SAS charity in your country as well by checking out our International Partners listing.