Let’s face it. Providing for your SAS loved one can get expensive. If you need assistance, the SATB2 Gene Foundation may be able to help.

We are proud to announce the launch of the 2023 SATB2 Gene Foundation Family Assistance Program (FAP). In 2021 we were able to support 19 SAS families and in 2022 we supported 18 families.  We are currently accepting applications through July 20, 2023, for our Family Assistance Program as part of our mission and ongoing commitment to providing our SAS families with the support they need. Families who apply and are approved for assistance can receive up to $1,200 USD to help them pay for items such as:

• Specialty Support Items (Examples include wheelchairs, medical strollers, specialty beds, and specialty car seats)
• Communication Support (This includes tablets, iPADs, communication apps, and specialty equipment to improve educational success and enhance communication.)
• Adaptive play items (Examples include adaptive bikes and swings; full-support swimming seats; bouncy chairs; weighted vests and blankets; sensory sacks)
• Base therapies (speech therapy, physical therapy, occupational therapy, applied behavior analysis therapy)
• Alternative therapies (e.g., therapeutic horseback riding; aquatic, music therapy, or massage therapy)
• Travel to a clinic/specialist (excluding travel to the ACH Multidisciplinary Clinic)

Please note that a confirmation of a SATB2-Associated Syndrome Diagnosis must be submitted as part of the application which can be uploaded during the application process or emailed by the deadline to info@satb2gene.org.  Failure to submit proof of diagnosis by July 20th will make your application incomplete and will not be considered for funding.

As there are often more applications for funding than can be supported, the board will prioritize applications from families in need who have yet to receive funding through the SATB2 Gene Foundation ahead of families who have received awards from either the Family Assistance Program or the GPD Employee Foundation iPad for Communication grant, per SAS dependent, during the current 3-year look-back period running from 2020 through 2022.

To learn more about the SATB2 Gene Foundation FAP, or to submit an application, click below.

The SATB2-associated syndrome Family Support Group (closed Facebook group) is a highly active group of family members of individuals with SATB2-associated syndrome.  Our SATB2-associated syndrome Family Support Group has daily communication on topics such as medical, developmental, and behavioral issues.  Additionally, we share resources with each other, and importantly, we also share triumphs, which we call SAS Smiles.  Members include families from all over the United States and Europe, as well as Australia and Canada.  Parents of individuals with SATB2-associated syndrome are encouraged to request access to join the group by clicking the button below. If you need additional assistance with your membership request for this group, please email Wiebke Sunderhauf.

An ongoing list of resources will be added here for families both within the United States and Internationally.  Visit this page often for updates.  Have a resource to share?  Email us to have it added! Please continue to check back as we update this section with more resources.

See below for additional family resources videos related to SATB2-Associated Syndrome.